Current Charity Partners
What we do
Young Epilepsy is the national charity supporting children and young people aged 25 and under with epilepsy and associated conditions, as well as their families.
We exist to improve the lives of children and young people with the condition to enable them to fulfil their potential and ensure they have the best quality of life. Our services include:
- Acting as a voice for the 112,000 young people with Epilepsy
- We provide outreach services across the country and we run a national helpline aimed at supporting young people and their families
- We deliver pioneering research and specialist diagnostic rehabilitation services
- For young people who require specialist support we operate St Piers based on our Lingfield campus which runs our school, college and home from home services.
- We strive to raise awareness of epilepsy and helping to remove stigma and discrimination whilst helping influence policy and thought.
What is Epilepsy?
Epilepsy is a disorder of the brain in which there is a tendency to have recurring seizures. The fact that seizures can reoccur is key, as a one off seizure does not mean it is epilepsy. It can affect anyone, at any age, from any walk of life. An epileptic seizure results from a sudden electrical discharge in the brain that causes changes in sensation, behaviour or consciousness.
Facts about Epilepsy:
- Approximately 600,000 people in the UK have epilepsy which is equivalent to around 1 in 103 people.
- There are at least 40 different seizure types and people may have one or several different seizure types.
- Only 3% of people with epilepsy are photosensitive, which means their seizures are brought on by flashing lights.
- Misdiagnosis rates in the United Kingdom are between 20–31%.
- In the UK, 70% of the population with epilepsy could be seizure free with the right treatment. Currently only 52% of the population of people with epilepsy are seizure free.
- Approximately 42% of the deaths per year are probably or potentially avoidable.
What the money raised will go towards
The money raised from this vital partnership will go towards funding our designated services aimed at supporting young people with Epilepsy. Thank you to Rontec for making this possible.